Live discussion with Rebecca Skloot
A live chat with the author of "The Immortal Life of Henrietta Lacks"
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Welcome everyone to today’s live discussion with @rebeccaskloot and Karen Maschke, moderated by Reuters Health’s @ivanoranskyby Reuters_Health via twitter 2/11/2010 4:48:46 PM -
Henrietta Lacks’ genes were some of the first ones to be cloned. Her cells have gone to space and helped make polio vaccineby Reuters_Health via twitter 2/11/2010 4:56:08 PM
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Karen J. Maschke, PhD is a Research Scholar at the Hastings Center and editor of IRB: Ethics & Human Research
www.thehastingscenter.org -
Maschke: Even though formal regulations didn't exist, scientists were aware of issues concerning informed consent in 1951by Reuters_Health via twitter 2/11/2010 4:59:02 PM
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Maschke: But patients didn’t need to be told of new research on their cellsby Reuters_Health via twitter 2/11/2010 5:00:04 PM
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Remember to go to live.reuters.com ssion_with_Rebecca_Skloot to ask questions and leave commentsby Reuters_Health via twitter 2/11/2010 5:04:42 PM
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Maschke: Once biological tissue is outside the body, it's legally considered "waste," but who gets to reap the profit once it gets valuable?by Reuters_Health via twitter 2/11/2010 5:07:41 PM
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Discussing doctor's authority vs. responsibility to patientsby Reuters_Health via twitter 2/11/2010 5:11:03 PM
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Maschke: the book raises lots of issues about being informed. “People want to know.”by Reuters_Health via twitter 2/11/2010 5:12:17 PM
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Confusing to many is that no one holds patent to HeLa cells. Others have added value to HeLa cells with their own patented technologies whereby cells were legally an "enabling technology." Besides ATCC, who charges a reasonable $256/vial, do those who added technology to HeLa cells actually owe the Lacks family money from a legal standpoint (keeping in mind that there is certainly an ethical responsibility for some profits to be shared with the family, IMHO)
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Who owns biospecimens? For more on Biobanking: DNA & Research, see Dr. Maschke's chapter in the Hastings Center Bioethics Briefing Book. www.thehastingscenter.org
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Some of Henrietta Lack's descendants still don’t have health insuranceby Reuters_Health via twitter 2/11/2010 5:17:40 PM
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Go to live.reuters.com ssion_with_Rebecca_Skloot to ask questions or leave commentsby Reuters_Health via twitter 2/11/2010 5:18:22 PM
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Maschke:Today, tissues are made anonymous as to who they came fromby Reuters_Health via twitter 2/11/2010 5:20:13 PM
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But once researchers contacted Lacks’ family in the 1970s, her cell line lost its anonymityby Reuters_Health via twitter 2/11/2010 5:22:36 PM
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Discussing patent rights and DNAby Reuters_Health via twitter 2/11/2010 5:23:34 PM
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There are 3,000–5,000 U.S. patents on human genes and 47,000 on inventions involving genetic material. More information on Gene Patents is in the Hastings Center's Bioethics Briefing Book.
www.thehastingscenter.org -
Diamond v. Chakrabarty case (http://en.wikipedia.org/wiki/Diamond_v._Chakrabarty) Opened floodgates to patents of bio materialsby Reuters_Health via twitter 2/11/2010 5:28:36 PM
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Maschke: “what is legal may not be the same as what is ethical”by Reuters_Health via twitter 2/11/2010 5:29:34 PM
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Lacks' cancer cells were uniquely virulent. In 6 months, they grew from the size of a nickle to take over her whole bodyby Reuters_Health via twitter 2/11/2010 5:34:21 PM
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Thanks to everyone for listening and asking questions todayby Reuters_Health via twitter 2/11/2010 5:46:34 PM
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The Hastings Center is a nonpartisan research institution dedicated to bioethics & the public interest since 1969.
www.thehastingscenter.org -
Check out Rebecca Skloot's website rebeccaskloot.com for more information about the bookby Reuters_Health via twitter 2/11/2010 5:47:32 PM
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